After dinner CiCi went to her usual spot by the window and watched the world go by. She can spend hours sitting here watching people come and go. I often sit next to her in silence – because I don’t know what else to say and although I know she loves hearing our voices….I’d love to hear hers too. I don’t know what she really wants, or likes – sometimes she looks unhappy and I don’t know why – I don’t even know her favorite color or song. My reality as a mom and her advocate is to be patient for vast amounts of time. Be patient when she refuses to walk the direction I want her to, be patient when she doesn’t want to go places we want to go – be patient when she doesn’t play “functionally” with her toys and throws it all over the place. And it’s not always easy being patient. I have to pick and choose my battles. I do get frustrated. And when I do show it, I sometimes get a big eyed look that reminds me how unfair this all is.
I’m thankful that today was a great day. No tantrums. Our PECS schedule worked today. She held my hand throughout the park and took me for a walk. I asked her questions about how she is feeling…and she smiled and held my hand. Although I don’t know what she was thinking about when she was looking out the window today, I do know that today was a great day and her hugs and smiles proved it.